Brendon has suffered from headaches and pain for all of his life. Like many Chiarians and parents of Chiarians experience, it ended up taking many misdiagnoses to finally find the actual source of his pain.
Brendon was first diagnosed with Type 1 Chiari Malformation which led to a slew of other testing. Soon after, Brendon found himself with a list of diagnoses including Ehlers Danlos Syndrome (EDS), tethered cord, Postural Orthostatic Tachycardia Syndrome (POTS), Atlantoaxial Instability (AAI), and neurogenic bowels.
Brendon's mom knew that he needed a specialist that understood that Brendon was complex and required treatment with care and extra attention. They Dr. Greenfield and trusted him with Brendon's life. The only downfall was that he was 1,000 miles away from home and to have surgery would require a minimum of two weeks in New York City.
Brendon's mom was immediately met with concern on how they'd be able to afford everything.
That's when DURAble Brains Foundation was recommended to her. We were able to offer Brendon and his mom, Jennifer, some assistance with transportation and meals to help make their stay easier!
Brendon & DBF
Here’s what Brendon’s mom, Jennifer, had to say:
We needed to concentrate on our sons health but finances were making that more difficult, knowing we'd be having to eat out and pay for transportation etc.
DURAble Brains was recommended to us and we were so amazed how kind and caring they were and helped us with the financial burden by providing giftcards for food and transport.
So grateful. Thank you for making a difficult time a little less stressful.
Your kind donations are going to go to more families like Brendon and Jennifer’s. We are so grateful for all of the support we have received to make stories like this happen! To help more families like Brendon's please visit our DONATE page.